So Ayden's last airway surgery went well but he has unable to let go of his oxygen and so he was kept until Wednesday evening rather than being discharged the next day. He is now being watched by the pulmonary doctors at Cincinnati and is back on oxygen. He is back on 1/8th liter and seems to be much more comfortable breathing than he had without it. Although we loved not being attached to wires and such we always knew in the back of our minds that he needed just a little bit of flow. He always just seemed to be working way too hard. This transition has been quite hard as now when it is just me and Ayden home alone I have to find someone to help carry the concentrator down stairs or be confined to our bedroom all day and go stir-crazy. I have a feeling I will be having many stir-crazy days to come!....Meanwhile, Ayden doesn't mind being confined to a room with me. As long as he is being held or talked to he is perfectly content.
Upon Ayden's arrival back at home this week he has begun to smile and coo and has even chuckled a time or two in response to our voices and touches!...It is freakin amazing!...I have to admit I felt as though he was never going to show any signs of happiness. Although he smiles for me a little, he smiles more for others tho. I still seem to be the only person he clams for though. I just wish he would show the happiness towards me more rather than just showing the comforting affects.
Ayden also went to see the Easter bunny this week because when he was in the hospital the bunny neglected to come to his floor :-(....Of course the photo we got from the mall was horrible but at least we have one to show later. He made the man in the costume very nervous as he coughed and began to act as though he was going to throw up...needless to say, the photo was very awkward looking to say the least!
Another amazing thing that amazed us this week was geared towards Ayden's vision. Of course we have heard time and time again that he would be blind and all we could hope for was for him to respond to light...Tonight before we were going to put Ayden to bed A.J. was playing with him a bit and trying to get a response by playing with his binkie. Instead of following it according to the touches he felt on his face, Ayden tracked it with is eyes from one side to the other! At first we thought it may have been just a fluke or a coincidence but he followed it another 3 times with his eyes and a 4th and 5th time by opening his mouth and turning his head as it passed by as well. It seemed as though he was thinking "where are you taking it?...It should be going in my mouth!"....It is still unbelievable and I am still in awe by it but we are trying to not get our hopes up too high about it....It just seems too good to be true!
Hopefully this next week continues to bring as many happy moments as this last week has!....We are just so giddy with excitement!
I have lots and lots of photos to share but no time to post them now...Just thought Id post a quick update & share our excitement!